Chronic Kidney Disease

Hi all. New to the app. Love all the info...just diagnosed with Stage 2 CKD, EGFR is 55, looking to up my number thru food. Gout since 18yrs old. The Alleve, NSAIDS have lowered my rate. Was wondering if anyone else has CKD.

Comments

  • And what foods are working to raise your number? I’ve gone plant based protein. Staying well hydrated. Incorporated blueberries, strawberries, onions, cabbage, garlic, red peppers so far. Oh. And arugula.

  • Loving this app. Tracks my sodium, phosphate, potassium intake along with all the other nutrients.

  • Let this be a place to post anything CKD. Good or bad...

  • http://www.whfoods.com/
    Great for doing your research.

  • edited May 2019

    https://www.dadvicetv.com/

    I’m not one to advertise but he started with a EGFR of 13, doctors were ready to put him on dialysis. Now it’s a 29! His doctor is monitoring his progress. Watch ALL his videos...

  • @Bagel848

    Managing chronic kidney disease can be very complicated from a nutrition standpoint, as potassium, phosphorus, sodium, protein, calcium, and vitamin D need to be carefully monitored in the blood and diet. Given that you're only at Stage 2, you shouldn't need to follow an overly restrictive diet (other than keeping sodium to as low as possible - 1500 mg would be my recommended limit); there's also definite benefit of eating more plant-based protein on kidney function. :)

    I would work with your nephrology team to ask them for the specific (if any) limits you need for potassium, phosphorus, and sodium. You can then set those numbers as a max. It would also be helpful to reference the 'Oracle' to find out which foods are the highest in those nutrients, being sure to avoid them.

    https://cronometer.com/blog/nutrient-oracle-food-suggestions/

    Let me know if you have any other questions!

    Kind regards,

    Susan Macfarlane, MScA, RD
    Registered Dietitian Nutritionist
    cronometer.com
    As always, any and all postings here are covered by our T&Cs:
    https://forums.cronometer.com/discussion/27/governing-terms-and-disclaimer

  • Susan. I really appreciate the feed back. Loving the app for monitoring those levels. Tried to stop meat totally. My kidney doctor thinks my levels have been suppressed due to NSAID usage with my gout. I’m discovering that gout is a by product of a sluggish liver/kidney. I’ve been using Garden of Life’s 1) Plant based protein and their raw fiber. Staying well hydrated each day all these combined is ridding my body of toxins. Increasing my fiber intake has also helped greatly. Any info you pass along is welcomed

    Side note: a CKD layout would be nice in the persons personal setting just an idea!

  • @Bagel848

    Thanks for the feedback - a kidney disease setting would be very beneficial, especially for healthcare professionals. Happy to hear that you are managing your health so well!

    Kind regards,

    Susan Macfarlane, MScA, RD
    Registered Dietitian Nutritionist
    cronometer.com
    As always, any and all postings here are covered by our T&Cs:
    https://forums.cronometer.com/discussion/27/governing-terms-and-disclaimer

  • lost 1 kidney to cancer and darn the one left is only at 37 egfr and I am leaking protein . the only thing I can control is food intake. glad I found this app and this form . thanks

  • I have stage 4 kidney failure and would love to be able to chart my critical lab values...BUN (blood urea nitrogen), GFR (glomerular Filtration Rate), serum creatinine, HCT, and HGB. This would be so nice and give me a helpful visual.

    I found a man on YouTube that has taken me from the brink of needing dialysis to 1 point from Stage 3. The most important thing is to know that I could reverse this by food. There is hope and I am thankful for this thread !!

  • Dad advice is the reason I am using this a App, the reason I am getting better, the reason I was encouraged. After all, if he can manage improving his kidneys while living In a different place every day and eating preprepared meals, surely I can!!
    So when my doctor could not or would not give a definite answer to a question, dadvice gave advice on some tips he had been given. Now I drink water based on my weight. Never had a problem with salt or phosphorous especially when I gave up sugar. We can all get better.

  • Hi YvonneK,

    You can chart custom biometrics in Cronometer!

    With a Gold subscription, you can create a Custom Biometric by following these steps:

    Login to the website https://cronometer.com/login/
    Click on Add Biometric
    Click on the green +
    Choose a name for your biometric and a unit of measure

    Unfortunately, Custom biometrics can only be created on the website. After it has been created, you'll be able to use in the mobile app.

    Best,

    Karen Stark
    cronometer.com
    As always, any and all postings here are covered by our T&Cs:
    https://forums.cronometer.com/discussion/27/governing-terms-and-disclaimer

  • Thank you for your time. I do have a gold subscription so I followed your instructions. However, the lab values I am seeking as listed above are not there. I also did not see where I could add custom ones.

  • Hi Yvonne,

    Once you have created your custom biometric, add it to your diary to record your lab values.

    You can view a chart of your logged biometrics in the Trends tab.The second chart in this tab has the list of biometrics, including any custom ones you have created.
    Click the drop-down menu to select which biometric you would like to see in the chart below:

    Best,

    Karen Stark
    cronometer.com
    As always, any and all postings here are covered by our T&Cs:
    https://forums.cronometer.com/discussion/27/governing-terms-and-disclaimer

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